The Worst. Day, Ever.

Last Friday was truly the worst day ever. But it wasn't the circumstances that made the day so horrible; it was my response to them.

Days before I had suffered an epic disappointment, made worse by the pain that disappointment caused my daughter. And I was tired. Caring for special needs kids, especially kids with "hidden disabilities," is exhausting. The burdens and struggles, day in and day out, wear you down. And, I had just begun to understand the depth of my mental exhaustion. Normally a pretty laid-back kind of person, I don't generally freak out about anything. Lately, though, I have been freaking out about every. little. thing. Driving in a new place completely stressed me out; I had never experienced that emotion before. I didn't like it. 

So, I cried. For a long time. But not until I had spewed my hurt, frustration, and disappointment on my husband. He listened patiently while I spewed, comforted me while I cried, and generally did an amazing job taking care of me. 

For my part, as I cried and vented, it was like a dam burst. Every negative thing I had experienced came to mind. The glass was definitely half (or three-quarters) empty. Not my usual pattern, even feeling that way frustrated me. It was truly a no-win situation. 

And then God met me, in the midst of my despair. And He demonstrated the truth of His promise in 2 Timothy 2:13, that even if I am faithless, He remains faithful. I experienced that. 

Ultimately, God is good. Period. Not because He makes my life "feel" good. Not because He protects me from disappointment or heartache. God is good because He is. He just is.

Sometimes trusting God requires more faith than other times. Sometimes it is easy. But His goodness is not dependent on my circumstances. His goodness is dependent on His character. And His character can be completely trusted. You may disagree with me, thinking back over your own heartbreaking story of God's apparent unfaithfulness. Let me say now that I'm sorry you've experienced such heartache and pain. But your circumstances still don't define the character of God. His goodness can not be called into question because your life hasn't been what you wanted it to be. God's goodness certainly can not be called into question because my life hasn't been what I wanted it to be, but I can tell you for certain it has not been. 

If my life was what I wanted it to be, I would never experience disappointment.
I would never be lonely, or sad, or hungry, or tired, or uncomfortable. But without all those experiences, I would never be the person God has made me to be. The process, just like for a butterfly or baby chick, isn't easy or comfortable, but it is very, very good.

And so, my worst day ever turned into a pretty amazing experience of seeing God's faithfulness in spite of me.

Melancholy

Maybe it is because I am not sleeping well, or maybe because of this crazy diet we are on, or maybe because life is slowing down and I actually have time to think, for the first time in over two years. Whatever the reason, I have been contemplating life. Somehow, that tends to take me back over mistakes I have made, or through situations I wish I could change. Such was the case last night; exhausted and ready for bed early, I wasn't able to get to bed until I was past that early window for sleeping. So, I stayed awake, for several hours. Before the night was over, I had wandered to a very dark place, thinking of friends who no longer consider me a friend, and reviewing all the times throughout my life when I had been rejected. Like I said, it was a very dark place. 

By God's grace, instead of meditating on those unpleasant awful memories, I cried out to Jesus, and focused on what was true; no matter who rejects me here on Earth, God promises to never leave me or forsake me (Heb 13), I am His name workmanship (Eph 2:10), and I am loved, not only by God, but by my family, too. 

Today, that melancholy has clung to me like mist on a foggy morning. Adding the challenges of life, it has been a less-than-stellar day, made worse by a migraine and malaise, most likely triggered by die-off from the GAPS intro diet (which I could have prevented, if I was more careful). 

Taking some time from the daily grind in my house, I slipped away to "detox," both literally and figuratively. As I was pouring my heart out to the Lord, He reminded me of what I need to do in times like these; keep my crown on!! 

Since God gave me that principle (which I thought was just a clever topic for speaking) it has amazed me how He has used it to encourage me. God has adopted me into His family. I am a daughter of The King. What a treasure?! What a precious reminder. No matter what happens in life, I can choose to keep my crown on. 

Unfortunately, it doesn't take away the pain of being rejected, nor does it magically restore broken relationships or undo mistakes. But, it gives me the grace not to be defined by these realities. It gives me "wind beneath my wings" to soar above my circumstances and keep my eyes on Jesus. 

Wow. The "detox" really helped, at least with the melancholy mood. It didn't take away my headache, or renew my strength and vitality completely, but I am SO thankful for God reminding me, again, who I am, and where my focus needs to be. God is so good!!

A Life Worth Celebrating

I really believe life is precious; worth celebrating. Whether big or small, young or old, neuro-typical or not, life is worth celebrating. So are milestones. You know, like birthdays and anniversaries and major accomplishments.

But, on the eve of a very significant milestone, I find myself ill-prepared, not ready to celebrate. My son turns one today. One year ago right now, I was in the hospital, working very diligently to bring this boy into the world. He didn't arrive for another twenty hours, but who is counting (besides me)?

It has been a very difficult year. Instead of being amazed at how quickly the last year has gone, we have made very slow progress; each month marked not by celebration and milestones, but by survival and sickness.

Admittedly, baby J isn't as sick as some. But I am physically, mentally, and emotionally exhausted by his needs. The energy and effort required to mount a celebration is simply not there. And that makes me sad.

Baby J will not pass this milestone uncelebrated, however. His big sisters worked on a cake, and his grandma is coming to visit in the afternoon. We won't make his favorite dinner (a long-honored family tradition), because he can't tell us what he wants. But he will eat cake and blow out candles to the tune of "Happy Birthday."

And I will have a choice; to focus on celebrating my sons first year, or on the fact that I am too tired to throw him a party. Honestly, I feel like a terrible mom for not doing a better job with birthdays in general. Instead of letting I ruin my day, however, I am going to make the most of what I've got. My son is a gift. His life is a precious treasure. And though the last year has been incredibly challenging, his is a life worth celebrating.

Learning Curve

My eleven month old son loves to climb stairs. Unfortunately, he is not very coordinated, so he is as likely to go down the stairs involuntarily as he is to go up. Consequently, we usually sit beside him as he crawls. Some of the time, however, we really don't have time to sit on the stairs while a not quite one year old practices his climbing skills. So, we push a stand-alone baby gate in the way.

This technique has worked quite well for several weeks. Today, however, our eleven month old made a discovery; the gate moves! So, he deftly pushed it out of the way and began to ascend the stairs without an escort. Life as we've known it is about to change; bummer!

On the bright side, our little guy, who has been plagued by so many struggles in his short life, is no dummy! I guess the change is good, in the end. I certainly don't want him stuck behind gates his whole life. I'll follow Ann VosKamp's lead and choose my son's mobility and ingenuity as something I can celebrate today.