The Worst. Day, Ever.

Last Friday was truly the worst day ever. But it wasn't the circumstances that made the day so horrible; it was my response to them.

Days before I had suffered an epic disappointment, made worse by the pain that disappointment caused my daughter. And I was tired. Caring for special needs kids, especially kids with "hidden disabilities," is exhausting. The burdens and struggles, day in and day out, wear you down. And, I had just begun to understand the depth of my mental exhaustion. Normally a pretty laid-back kind of person, I don't generally freak out about anything. Lately, though, I have been freaking out about every. little. thing. Driving in a new place completely stressed me out; I had never experienced that emotion before. I didn't like it. 

So, I cried. For a long time. But not until I had spewed my hurt, frustration, and disappointment on my husband. He listened patiently while I spewed, comforted me while I cried, and generally did an amazing job taking care of me. 

For my part, as I cried and vented, it was like a dam burst. Every negative thing I had experienced came to mind. The glass was definitely half (or three-quarters) empty. Not my usual pattern, even feeling that way frustrated me. It was truly a no-win situation. 

And then God met me, in the midst of my despair. And He demonstrated the truth of His promise in 2 Timothy 2:13, that even if I am faithless, He remains faithful. I experienced that. 

Ultimately, God is good. Period. Not because He makes my life "feel" good. Not because He protects me from disappointment or heartache. God is good because He is. He just is.

Sometimes trusting God requires more faith than other times. Sometimes it is easy. But His goodness is not dependent on my circumstances. His goodness is dependent on His character. And His character can be completely trusted. You may disagree with me, thinking back over your own heartbreaking story of God's apparent unfaithfulness. Let me say now that I'm sorry you've experienced such heartache and pain. But your circumstances still don't define the character of God. His goodness can not be called into question because your life hasn't been what you wanted it to be. God's goodness certainly can not be called into question because my life hasn't been what I wanted it to be, but I can tell you for certain it has not been. 

If my life was what I wanted it to be, I would never experience disappointment.
I would never be lonely, or sad, or hungry, or tired, or uncomfortable. But without all those experiences, I would never be the person God has made me to be. The process, just like for a butterfly or baby chick, isn't easy or comfortable, but it is very, very good.

And so, my worst day ever turned into a pretty amazing experience of seeing God's faithfulness in spite of me.

Sensory Sunday

Getting sensory kids dressed is never simple or easy. But when you are trying to get kids ready for church, it somehow makes everything more complicated. This morning was slightly easier than Friday, but today I wanted to get somewhere by a certain time. Not a good situation. 

My youngest son usually has trouble with pants; the waistband bothers his tummy. So, he is very picky about what goes around his belly. Today, after convincing him to wear clothes (as opposed to pajamas) to church, the pants went on easily. It was the shirt that didn't work. Once I buttoned the sleeves, he couldn't stand the sensation of the cuffs on his wrists. So, we tried a few different shirts before finding one he could tolerate. 

My youngest daughter usually struggles with shoes. And she was true to form today. Her shoes didn't fit. They were shoes she picked out. So, she decided she didn't want to go to church. I gave her the option of wearing shoes or going barefoot. She didn't have the option of staying home. So, she found shoes that DID fit. They were fluorescent orange, with bright pink buckles; not exactly a good color match with a red and black dress. But, I figured shoes were better than nothing. We headed off to church. 

Barely out of the car, my sweet girl began to meltdown, because of her shoes. Again, she demanded to go home. Again, I gave her the option of going barefoot. Her daddy offered to carry her. She refused. All she could think about was the discomfort of her shoes. Panic, induced by the overwhelming input from her uncomfortable shoes, brought on tears (in the girl, not the parent). Finally, we were able to get her inside. Finally, both kids went to their classes and we went to church, albeit thirty minutes late and rather frazzled. But we made it. 

Some days, I don't have the energy for such challenges. Some days, I simply want to get kids up, get them dressed without difficulty, to be able to walk out the door when it's time to leave, and not have to think twice about sensory issues. That is not my life. My children will always be "sensory kids." We can help them in some way. We can provide them with a rich daily sensory diet, we can help them learn to accommodate their most challenging sensory issues, we can help them achieve a high level of function in a world that can so often be overwhelming. But it is tiring, emotionally and mentally. And some days I just don't want to do it anymore.  

Samson's Secret of Success

Samson and success aren't always two words people think of in the same sentence. Honestly, does Samson really seem that successful? After all, he disobeyed God, he married (or tried to, anyway) a Philistine woman, and died a slave. This man who was set apart for God from before his conception, who never (willingly) cut his hair, who God called a judge in Israel; this is the man who defied God's ways, at almost every turn.

Just where is Samson's success? It certainly isn't obvious. The most common sermon topic I've heard on his life is definitely not dealing with success. It is usually an example of why we need to obey God, and what happens when we walk in opposition to God's ways. And with good reason. Samson definitely walked in defiance of God's Law - the very law he was ordained (from before his birth) to uphold!

Yet, when you look past the obvious, a precious nugget begins to emerge, precisely because Samson didn't care about walking on obedience to God. The power of the Spirit came upon him at times, but it wasn't because Samson wanted it. God used Samson to judge the Philistines, but not because Samson wanted to be used, or even submitted to God's authority. And yet, Samson still ultimately accomplished what God ordained him to accomplish.

The reason Samson was successful is because God worked through Samson's life! His purposes were not thwarted, regardless of Samson's attitude, behavior, disrespect, or arrogance. In the end, Samson accomplished exactly what God wanted him to. The angel who spoke to Manoah's wife said, "...he shall begin to save Israel from the Philistines." Judges 13:5 ESV. And he did.

But take a minute to really examine the nugget; God accomplished what He'd planned through Samson...in spite of Samson's attitude AND behavior.

Samson didn't submit to God's authority. He wasn't indwelt by the Holy Spirit. He didn't obey God's Law; the only part of his oath that he kept was not to cut his hair, and that was probably because of his own selfish pleasure of being strong!! Samson didn't care. The average follower of Jesus, however, cares...deeply.

If God could accomplish His purposes through Samson, who was SO not seeking to be God's vessel, what can God do through His people who truly desire to, in our frail, broken ways, walk in His way? If God can work through Samson, He can work through anyone! And that gives me peace, comfort, and confidence.

Two Weeks of Hell, or Not

For whatever reason, I sat down with my teenage daughter, to watch a little tv before heading to bed. We don't have regular tv, like I had when I was a kid. No, we have Netflix, and can watch whatever we choose, and there are probably thousands of choices. The selection was a documentary on the (then) two (now three) week selection process to be part of the Army's Green Berets.

Wow, was it intense. Not only have I never been in the military, I can tell you without thinking twice that I DO NOT have what it takes to be a Green Beret, nor have I ever dreamed of anything remotely resembling that kind of , torture, torment, training, experience. A young man we knew survived the selection process (which made watching the program more interesting), but he decided it wasn't what he wanted to do. Even so, my respect for him, and all the soldiers in the Special Forces, has gone up significantly

I realized, watching that documentary on the process by which the Army selects soldiers who can train (for a year!) to wear the coveted Green Beret, that motherhood is also pretty intense. Now don't get me wrong; I'm NOT saying that mothers qualify for the Special Forces, nor am I suggesting that parenting is anything at all like combat, where people (who want to kill you) are shooting real bullets right at you (because they don't just want to kill you, they are actively trying to kill you). It is definitely not comparable on so many levels.

But, in some ways, it is. Mothers understand sleep deprivation. Mothers understand stress, being pushed to (and beyond) their limits. Just when you think you can't go on another step, someone is crying, or someone is puking (on you), or the washing machine dumps gallons of water all over your floor, and you have to take care of it. Mothering is an exercise in endurance, if ever there was one. And, at the end of all your efforts, your children (until they become parents themselves) have no clue what it has taken for you to get them to that point alive.

The last sixteen (plus) months have been pretty intense. If I had a choice, I certainly wouldn't volunteer for what I've been through (unlike the amazing men who volunteer for the Special Forces selection process), but, as I look back, I'm thankful for what God has done in my life. It has been good (though miserable), and life-changing.

I do not have what it takes to serve in the Special Forces of the US Army. I have great admiration for each and every person who does; even more so after watching that documentary. What I do have is the confidence that God will give me what I need, even if that means dealing with crying children until the early hours of the morning, cleaning up puke (again), or taking one more step in this journey through the desert. I know, because He has, and that is a very good thing.

Streams in the Desert

Isaiah 35:4-7 is a familiar passage. I have heard it before, probably many times. But for some reason it leapt off the page at me when I read it a few days ago. In the English Standard Version, it reads "Say to those who have an anxious heart, "Be strong; fear not! Your God will come...He will come and save you...For waters break forth in the wilderness, and streams in the desert; the burning sand shall become a pool, and the thirsty ground springs of water..."


It is kind of funny; I don't usually picture streams in deserts. They are dry, dusty places, without much rain (the qualification as a "desert" is based on rainfall, or the lack of it) and long distances between pools. Oases exist, but they are not common. And God is speaking to a people who understand deserts. The picture He paints is very clear, and powerful; God will save His people, and the desert in which they find themselves will be transformed. Wow; what an amazing picture!!

For me, the even more amazing part is that I've been experiencing it lately. God has not left me alone in this desert sojourn. Many wonderful people have come alongside me, through prayer, and other more practical methods (thank you Erica and Cynde). A dear friend, who does prayer counseling, spent an afternoon with me recently, and it was incredibly powerful. Since that time, my experience has been more like walking by the streams of living water than stumbling through a dry, dusty desert.

The funny part is, my life hasn't really changed. In addition to my two special-needs kids, one of my girls recently broke her ankle, for the second time in six months ( just weeks after corrective surgery!) and has some serious dietary deficiencies (she may also need major surgery on both her ankles), I spent the night (literally) in the ER with my five year old, and my oldest daughter apparently needs surgery to correct hip dysplasia. The saga with our youngest continues; a possible immune deficiency and allergies to common foods (dairy and eggs) have further complicated an already challenging situation. Yet, God is providing me with streams in this desert!

Don't get me wrong; my days are not full of beautiful scenes fit to inspire Norman Rockwell paintings. Laundry still piles up along the streams in my desert, and I get so tired of kids crying. Dinner still has to be set on the table (which requires making it, ahead of time), toilets still need to be cleaned, and mildew still grows in my shower. But, God is caring for me in the midst of this crazy time. He is tending my heart, bringing encouragement, and helping me see that I'm not alone, even when it feels like I am. This journey is still lonely, but I realize that the trail God has set before me parallels a stream, His stream, and from it I can draw refreshment, take courage, and journey for another day.