Sunday, February 05, 2012

Understanding and acceptance

It appears after almost eleven months of struggle, that we have some answers as to why our baby boy has struggled so much with life. He has some sort of brain injury. The specialist called it "static encephalopathy." In layman's terms; Cerebral Palsy. The reflux may be secondary to the CP and does explain the frequent sinus infections. JJ's fussiness/irritability can most likely be traced back to the CP, as can his thermo-regulation issues. Even his sensory issues can be traced back to the CP.

Though no parent wants to be told their child is less than perfect, I am very relieved. JJ's life will never be easy (whose is), but God knew that from the beginning. Like Bethany Hamilton, I don't need easy; I just need possible. Now that we have answers, finding ways to cope is very possible. And that is something I can accept and celebrate.

God's goodness isn't dependent on circumstances, and in these less-than-perfect circumstances, we choose to celebrate God's goodness, too. What a gift!

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