The Worst. Day, Ever.

Last Friday was truly the worst day ever. But it wasn't the circumstances that made the day so horrible; it was my response to them.

Days before I had suffered an epic disappointment, made worse by the pain that disappointment caused my daughter. And I was tired. Caring for special needs kids, especially kids with "hidden disabilities," is exhausting. The burdens and struggles, day in and day out, wear you down. And, I had just begun to understand the depth of my mental exhaustion. Normally a pretty laid-back kind of person, I don't generally freak out about anything. Lately, though, I have been freaking out about every. little. thing. Driving in a new place completely stressed me out; I had never experienced that emotion before. I didn't like it. 

So, I cried. For a long time. But not until I had spewed my hurt, frustration, and disappointment on my husband. He listened patiently while I spewed, comforted me while I cried, and generally did an amazing job taking care of me. 

For my part, as I cried and vented, it was like a dam burst. Every negative thing I had experienced came to mind. The glass was definitely half (or three-quarters) empty. Not my usual pattern, even feeling that way frustrated me. It was truly a no-win situation. 

And then God met me, in the midst of my despair. And He demonstrated the truth of His promise in 2 Timothy 2:13, that even if I am faithless, He remains faithful. I experienced that. 

Ultimately, God is good. Period. Not because He makes my life "feel" good. Not because He protects me from disappointment or heartache. God is good because He is. He just is.

Sometimes trusting God requires more faith than other times. Sometimes it is easy. But His goodness is not dependent on my circumstances. His goodness is dependent on His character. And His character can be completely trusted. You may disagree with me, thinking back over your own heartbreaking story of God's apparent unfaithfulness. Let me say now that I'm sorry you've experienced such heartache and pain. But your circumstances still don't define the character of God. His goodness can not be called into question because your life hasn't been what you wanted it to be. God's goodness certainly can not be called into question because my life hasn't been what I wanted it to be, but I can tell you for certain it has not been. 

If my life was what I wanted it to be, I would never experience disappointment.
I would never be lonely, or sad, or hungry, or tired, or uncomfortable. But without all those experiences, I would never be the person God has made me to be. The process, just like for a butterfly or baby chick, isn't easy or comfortable, but it is very, very good.

And so, my worst day ever turned into a pretty amazing experience of seeing God's faithfulness in spite of me.

Unconventional Appreciation

As the mother of eight, two with very challenging (though "hidden") special-needs, several people have asked us if we are planning to have more kids.So, we've (once again) been contemplating the whole birth-control question. And it's had me thinking; what if my husband had gotten a vasectomy when we planned to, two babies ago?

If my husband had gotten that vasectomy, we would never have been blessed with our two youngest children. In a culture that doesn't value life (pre-born life, the elderly, or those with questionable "quality of life"), it is easy to look at our two youngest and think perhaps we made a mistake. Life would have been so much simpler without them.

Then I realized how much I would have missed if these two blessings had never come into our family; the joy, the lessons, the appreciation for what I've always taken for granted.

Psalm 139:14-16 (ESV) says, "I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well. My frame was not hidden from you when I was being made in secret, intricately woven in the depths of the earth. Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them."

God didn't make a mistake when He created the man who penned those words, and He didn't make a mistake when He formed my precious son, or my sweet little girl, either. They are both "fearfully and wonderfully made," not just in spite of their challenges, but because of them. 

Exodus 4:11 says, "Who has made man's mouth? Who makes him mute, or deaf, or seeing, or blind? Is it not I, the LORD?"

Perhaps you don't know God the way I do; you don't trust His sovereignty or see His goodness. In which case you won't appreciate the above verses as I do. But, for me, that passage in Exodus brings peace, comfort, and hope. God made Moses "slow of speech." Perhaps he had a stutter or he got his tongue wrapped around his eye teeth, so he couldn't see what he was saying. Whatever it was, suffice it to say Moses was not eloquent. Yet he was God's spokesman to Pharaoh and he led hundreds of thousands (if not millions) of people through the wilderness, forging a new nation in the process. Pretty amazing feat for a man who couldn't really talk.

Knowing how God uses people who are broken to accomplish great things, I wonder what He has planned for my two precious blessings. And I'm incredibly thankful I didn't refuse the gifts.Would life have been easier? Yes, and less expensive, too. But I'm not interested in easy, or in amassing (much) worldly wealth. The joy I experience watching my boy who has struggled to walk toddle towards me with his arms open is more valuable than anything money can buy. The pleasure of hearing the day's events from my precious daughter who has struggled to talk fills my heart fuller than Donald Trump's bank account.

So, I want to pose a question; is easy necessarily better? Why or why not?

Hard lesson learned

I love camping. It is truly one of my favorite things to do. I love it so much that I have camped my way across the country, twice (and I was pregnant with babies number five and eight, respectively)! We camped all the way home from Alaska, too. After the last fifteen months, though, I think my camping career is going to be put on hold for a while. Managing my two younges at home is stressful enough; add the challenges of begin away from home, plus the extra effort required for camping, and you have a mess. What once brought refreshment and joy now simply brings exhaustion.


For the sake of my sanity, and to protect the innocent, I'll spare you the details. Just imagine the worst camping trip ever, then multiply it by a very stressed out mama, unusually hot AND cold weather, unrealistic expectations (by that stressed out mama), and eight children (two who need structure, don't do well with changes, and have physical challenges); you have a perfect storm!

The experience wasn't a total wash, however. I learned some very valuable lessons. You may have learned these quite some time ago, and not have a clue why it's taken me so long. My explanation? I am a slow learner, and I (generally) only learn from experience. Painful experience. So, here are the lessons I've learned:

• camping when exhausted is a bad idea
• camping with special-needs kids can be extra stressful (especially with two kids who fall more than the average bear, and you are cooking around a campfire), even if you've camped with them before
• camping after an incredibly stressful year is incredibly stupid and should not be attempted by the faint-of-heart  anyone!
• when you go camping under the above conditions, don't expect to have fun, and don't expect people (even the ones you are camping with) to understand why you are not having fun.

After the worst camping trip ever, I have made a decision; I am not going camping again, for a long, long, LONG time. It is just too hard. I've also learned something else; disappointment and adjusted expectations are the harsh realities of my new life. It is a hard lesson learned the hard way. But, now it is learned, along with a few other valuable lessons. Though God has me on a difficult journey through the desert, I am planning to do the rest of it in the comfort of my own home!

Streams in the Desert

Isaiah 35:4-7 is a familiar passage. I have heard it before, probably many times. But for some reason it leapt off the page at me when I read it a few days ago. In the English Standard Version, it reads "Say to those who have an anxious heart, "Be strong; fear not! Your God will come...He will come and save you...For waters break forth in the wilderness, and streams in the desert; the burning sand shall become a pool, and the thirsty ground springs of water..."


It is kind of funny; I don't usually picture streams in deserts. They are dry, dusty places, without much rain (the qualification as a "desert" is based on rainfall, or the lack of it) and long distances between pools. Oases exist, but they are not common. And God is speaking to a people who understand deserts. The picture He paints is very clear, and powerful; God will save His people, and the desert in which they find themselves will be transformed. Wow; what an amazing picture!!

For me, the even more amazing part is that I've been experiencing it lately. God has not left me alone in this desert sojourn. Many wonderful people have come alongside me, through prayer, and other more practical methods (thank you Erica and Cynde). A dear friend, who does prayer counseling, spent an afternoon with me recently, and it was incredibly powerful. Since that time, my experience has been more like walking by the streams of living water than stumbling through a dry, dusty desert.

The funny part is, my life hasn't really changed. In addition to my two special-needs kids, one of my girls recently broke her ankle, for the second time in six months ( just weeks after corrective surgery!) and has some serious dietary deficiencies (she may also need major surgery on both her ankles), I spent the night (literally) in the ER with my five year old, and my oldest daughter apparently needs surgery to correct hip dysplasia. The saga with our youngest continues; a possible immune deficiency and allergies to common foods (dairy and eggs) have further complicated an already challenging situation. Yet, God is providing me with streams in this desert!

Don't get me wrong; my days are not full of beautiful scenes fit to inspire Norman Rockwell paintings. Laundry still piles up along the streams in my desert, and I get so tired of kids crying. Dinner still has to be set on the table (which requires making it, ahead of time), toilets still need to be cleaned, and mildew still grows in my shower. But, God is caring for me in the midst of this crazy time. He is tending my heart, bringing encouragement, and helping me see that I'm not alone, even when it feels like I am. This journey is still lonely, but I realize that the trail God has set before me parallels a stream, His stream, and from it I can draw refreshment, take courage, and journey for another day.